Friday, August 15, 2025
Chimamanda Ngozi Adichie - Dream Count (Harper Collins, 2025) ****
Wednesday, August 13, 2025
Stefan Larsson - The Patient Priority (McGraw-Hill, 2023) ***½
They also plead for better integration of care, by type of disease or condition, and based on solid registries.
"In the past, outcomes measures have traditionally been developed by specialty societies and, therefore, tend to focus on specific interventions or procedures. Sometimes, focusing on a specific procedure makes sense. Cataract surgery is probably the best example, because it is the only treatment for patients suffering from cataracts. But in most situations, the ideal health outcomes to track for a given condition should reflect the overall care for a patient's medical condition, in which multiple specialties are usually involved and multiple treatment options are available, so clinicians can assess the relative effectiveness of different types of treatment. Procedure-based registries have played an important role in improving hip and knee arthroplasty, but they can't really address the broader question about the optimal treatment for the underlying disease of osteoarthritis. Or consider a patient suffering from back pain: for that condition, the relevant outcomes measures should be broad enough to assess the comparative impact of, say, physical therapy versus surgery." (p.56)
This approach should look at the entire patient pathway from prevention to end of treatment. Today, care is really a step-by-step approach, with none of the steps seen as being part of a disease continuum. Obviously the reality is different, and patients also live in a world where they are confronted with other problems that does not always make treatment optimal.
"An approach to care delivery that integrates both clinical interventions along the entire treatment pathway and nonclinical interventions that encourage prevention and address the social and behavioral determinants of health is not only a more effective way to monitor and treat patients, it also allows for better coordination across multiple stakeholders and gives health systems full visibility of the system costs to make informed tradeoffs-for example, investing in preventive care to avoid high treatment costs at later points in the care-delivery value chain." (p. 74)
The Netherlands for instance, had a visionary idea, that we can fully support, based on the following four essential points. Whether this has actually been done, I have not been able to verify.
- "To reach a consensus among key stakeholders by 2022 on the outcomes to be measured for conditions representing 50% of the total disease burden, both by adapting international standards for use in the Netherlands and by developing new metrics
- To support shared decision-making on treatment choices between providers and patients, by making health information more understandable for patients, and· by equipping health professionals with the necessary skills and information to have meaningful conversations about treatment choices with their patients
- To promote the outcome-based reorganization of care delivery and reimbursement through the sharing of best practices, the development of more integrated care chains, and the encouragement of more outcome-based contracts between insurers and providers
- To facilitate better access to relevant and up-to-date outcome information, through the development of a state-of-the-art health informatics infrastructure, with the goal of making it easy for patients to report data, ensuring that data is well-organized and scalable, promoting access for all relevant parties for the purposes of benchmarking and research, and maintaining privacy and security" (p. 216)
Because of this lack of patient perspective, there is also barely any mention of patient advocacy or patient organisations in their analysis, which is disturbing to say the least. As representatives of the 'lived experience' we can advocate for better adherence, better alignment with the life goals of individuals, helping to capture patient satisfaction data, etc, etc.
That is what we are advocating for. That is where the low-hanging fruit is to be found.
W.G. Sebald - The Rings Of Saturn (Vintage, 2020) ****½
German author W.G. Sebald was also a professor of literature, and was appointed at the University of East Anglia in Norwich UK. Like his other novels "Austerlitz"(2001), "A Place In the Country" (1998), and "The Emigrants" (1992), Sebald's writing fits in a category of its own, a kind of literary non-fiction. In "The Rings Of Saturn", originally published in German in 1995, he describes a long walk along the British east coast, starting is Lowestoft, walking south to Orford, then travelling back inland to the north-west.
He marvels at the world, at people, at inventions, at nature and animals, and whatever the subject, his writing is entertaining, beautiful and very literary. And always, behind the light-footed tone, behind the apparent sometimes insignificant trivia, behind the text, there is a sense of loss, of doom, of darkness.
"Browne's writing can be held back by the force of gravitation, but when he does succeed in rising higher and higher through the circles of his spiralling prose, borne aloft like a glider on warm currents of air, even today the reader is overcome by a sense of levitation. The greater the distance, the clearer the view: one sees the tiniest of details with the utmost clarity. It is as if one were looking through a reversed opera glass and through a microscope at the same time. And yet, says Browne, all knowledge is enveloped in darkness. "What we perceive are no more than isolated lights in the abyss of ignorance, in the shadow-filled edifice of the world". (p. 19)
On the herring:
"An idiosyncrasy peculiar to the herring is that, when dead, it begins to glow; this property, which resembles phosphorescence and is yet altogether different, peaks a few days after death and then ebbs away as the fish decays. For a long time no one could account for this glowing of the lifeless herring, and indeed I believe that it still remains unexplained. Around 1870, when projects for the total illumination of our cities were everywhere afoot, two English scientists with the apt names of Herrington and Lightbown investigated the unusual phenomenon in the hope that the luminous substance exuded by dead herrings would lead to a formula for an organic source of light that had the capacity to regenerate itself. The failure of this eccentric undertaking, as I read some time ago in a history of artificial light, constituted no more than a negligible setback in the relentless conquest of darkness." (p. 58-59)
Yet his trivia are also fun. He knows how to take the reader by the hand, and make him/her look at things differently. He also tells for instance the story of his grandmather who kept goldfish, and who washed her each of them with soap every day, and then put them on the windowsill to let them enjoy the air a little bit, before putting them back in their aquarium. Or this description is typical of how he builds up his descriptions to a climax.
"No details of the end of the three-master have come down to us. There were eyewitnesses who claimed to have seen the commander of the English fleet, the Earl of Sandwich, who weighed almost twenty-four stone, gesticulating on the afterdeck as the flames encircled him. All we know for certain is that his bloated body was washed up on the beach near Harwich a few weeks later. The seams of his uniform had burst asunder, the buttonholes were torn open, yet the Order of the Garter still gleamed in undiminished splendour" (p. 77)
I can also appreciate his view on Belgium, yet not entirely either.
"And indeed, to this day one sees in Belgium a distinctive ugliness, dating from the time when the Congo colony was exploited without restraint and manifested in the macabre atmosphere of certain salons and the strikingly stunted growth of the population, such as one rarely comes across elsewhere." (p. 122)
Deep down, something is indeed terribly wrong with our world, and he sees things evolving for the worst, affecting the author too.
"It is as if everything was somehow hollowed out. Everything is on the point of decline, and only the weeds flourish: bindweed strangles the shrubs, the yellow roots of nettles creep onward in the soil, burdock stands a whole head taller than oneself, brown rot and greenfly are everywhere, and even the sheets of paper on which one endeavours to put together a few words and sentences seem covered in mildew. For days and weeks on end one racks one's brains to no avail, and, if asked, one could not say whether one goes on writing purely out of habit, or a craving for admiration, or because one knows not how to do anything other, or out of sheer wonderment, despair or outrage, any more than one could say whether writing renders one more perceptive or more insane" (p. 182)
Brilliant.